FOR PATIENTS & CAREGIVERS
SUPPORT RESOURCES FOR PANCREATIC CANCER
Coping with the physical and emotional impacts of cancer can be difficult. The following is a list of helpful organizations for people with pancreatic cancer and their caregivers.
Pancreatic Cancer Action Network® (PanCAN®)
(877) 272-6226 pancan.org
PanCAN provides free, in-depth, and personalized resources and information on pancreatic cancer.
National Comprehensive Cancer Network® (NCCN®)
(215) 690-0300 nccn.org
The National Comprehensive Cancer Network® (NCCN®) is dedicated to improving the quality of cancer care, so patients can lead better lives. Treatment with liposomal irinotecan (ONIVYDE) + 5-FU/LV is recommended by the NCCN for certain people with metastatic pancreatic cancer.*
Let’s Win! Pancreatic Cancer Initiative
Let’s Win! Pancreatic Cancer is changing the narrative around pancreatic cancer. Instead of sharing dismal statistics, Let’s Win! breaks down the barriers between patients, doctors, and researchers through a dynamic website and robust social media program in both English and Spanish. With a mission based on information and outreach, Let’s Win! focuses on unmet needs in the pancreatic cancer world. Its message is simple: Everyone who is diagnosed with pancreatic cancer should have easy access to information about the best treatment options available.
HELPFUL COMMON TERMS
The following is a list of common terms relating to pancreatic cancer and your treatment with ONIVYDE + 5-FU/LV.
Chemotherapy (kee-moh-THEH-ra-pee) Medicines or drugs used to treat cancer. Commonly referred to as “chemo.”
Fluorouracil (floor-oh-YOOR-a-sil) A chemotherapy drug used to treat certain types of cancer. Also known as “5-FU.”
Gemcitabine (gem-SITE-a-bean) A chemotherapy drug used to treat certain types of cancer.
Intravenous (in-truh-VEE-nuss) infusion A method of delivering fluids and medicine using a needle or thin tube (called a catheter) inserted into a vein. Often referred to as “IV.”
Irinotecan (ear-ee-no-TEE-can) A chemotherapy drug used to treat certain types of cancer.
Leucovorin (loo-koh-VOOR-in) A drug (also called “folinic acid,” and derived from folic acid) used to treat certain types of cancer, as well as certain types of anemia. Also known as “LV.”
Liposome (LIPE-oh-sohm) A formulation that helps to deliver microscopic substances (such as anticancer drugs) to cells in the body.
Lymphocytes (LIM-foh-sites)Cells that originate from stem cells, making up about 20-30 percent of the white blood cells found in normal human blood.
Metastatic (meh-tuh-STA-tik) Cancer that has spread from where it first started (the primary site) to other organs or structures in the body.
Neutropenia (noo-troh-PEE-nee-uh) A decrease in the number of white blood cells (neutrophils) that respond quickly to an infection. Having neutropenia increases a person’s risk of getting an infection.
Neutrophils (NOO-troh-fills) White blood cells that respond quickly to an infection.
White blood cell count The number of white blood cells in a blood sample, determined through a laboratory blood test.
*Referenced with permission from the NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines®) for Pancreatic Adenocarcinoma V.1.2022. © National Comprehensive Cancer Network, Inc. 2022. All rights reserved. Accessed May 5, 2022. To view the most recent and complete version of the guideline, go online to NCCN.org.